Macular Degeneration and Me

Low Vision and High Hope

All the Beauty of the World With or Without Vision

A few days I got a heartfelt comment from a woman who told her story of coming to terms with mac degen and her plans to make sure her life goes on and goes on in a very positive fashion.

She does go on to say that she will miss ‘seeing’ the beauty of the earth and photographing what she sees.  This reminded me of several people who have taken this challenge and turned it into some of the most beautiful and expressive photography I’ve ever seen.  Read on about two of my favorites:

The images from Lucent Imagery capture the life lived by someone who is legally blind – I love the notes that go with the pictures – makes it seem like I’m there with her.

And then there is this article about Peter Eckert, The Blind Photographer, who took up photography after he lost his vision to Retinitis Pigmentosa at age 28.  Explore his world and his award-winning photography.

There are many other photographers, both amateur and professional, who make sense of a no or low vision world through the lens of a camera.

Perhaps they see the beauty of the world though their mind’s eye. and we can all learn from that.

Note:  my iPad has given me the ability to capture things that happen around my life.  It’s easy to enlarge what I’m trying to photograph and there’s even a small telescopic lens and tripod, although I haven’t used those yet.



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10 thoughts on “All the Beauty of the World With or Without Vision

  1. nystagmite on said:

    You are so right, that photography, amongst many other things, is not something we need to give up because of macular degeneration.

    In my own case, the macular degeneration pitched me into being a photographer, and I’ve been happily obsessed with it for several years.

    It does take the mind’s eye to be involved, and I’d add every other sense you’ve got. What’s under your feet, the warmth of the sun on your left cheeck, the smell of lavender, the sound of bird song, can all stimulate a meaningful photograph. This has certainly enriched my life, and I’d say to anyone else, have a go, even if like me you’ve hardly ever touched a camera before. It’s never been easier, with cheap disposable film cameras, phones, tablets and the rest. The important factor is the person behind the camera, never mind if your camera didn’t cost thousands!

    For what it’s worth, I put my reasons for being a blind photographer into a slide show, which is here…

    • Hello Vince and thank you for commenting. I viewed your video and would love to write more about it. May I have your permission to publish the link?

      I also enjoy and share your view that we don’t have to give things up when faced with the challenges of mac degen (or anything else actually) we just have to use our imaginations, develop other skills and accept ‘change’ as a way of life. I haven’t been very good about these things this year and comments from the past few days have helped me get a better balance on those challenges. Thank you for that.

      I look forward to hearing more about your photography and some of the challenges you have with mac degen.

      • Katharine Emsden on said:

        Dear Pepi:
        wet mac,in both eyes, Jan,’15 opthalm. saw OD eye ready for cataract removal but has pucker & pseudoexfoliation as well as mac. degen, clouding vision SO he tells me vision improvement unlikely, risks of dislocation of IOL because of weak support structures possible. Retina specialist says no danger of not removing cataract at this time(feb.’15) SO I DO NOT WANT REMOVAL. Opinion? Thanks,Katharine

      • Wow! So many things to deal with. As you know I’m not medical so I can’t have an opinion on this but I would ask you a couple of questions. Have the two docs spoken to each other about this, discussed conflicting opinions with you? I would think this would be very important for you to request.

        Do you have the ability to ask for a second opinion possibly from a low vision specialist or another ophthalmologist with mac degen research background? Are there any mac degen support groups in your area that you could discuss this with? What happens if you do nothing?

        Do you have any other health issues? What does your primary doc say? These are just a few of the things I believe you should ask or queston. Sorry I can’t offer an opinion but I will think of you and offer a prayer for guidance. My best to you.

  2. Katharine Emsden on said:

    So thoughtful of you to share Becky’s photo journalist story with many of us who follow every bit of inspiring news from you. It’s been a year of so since we “met”, and I hunger after the worlds others have “uncovered” as they tred, softly but with determination, along kunknown paths. I love photography and want to take up the challenge of using those lenses to back up my own. Thanks and may 2014 bring you daily joys of discovery specially available to us limited visionaries if we care to recognize them. Katharine

    Date: Sun, 12 Jan 2014 21:24:43 +0000 To:

    • Katharine – how wonderful to hear from you. This past year has been a challenge in some unusual ways. And a joy in so many other ways – hearing from you and others inspires me to continue sharing experiences, emotions and information along the unknown path you so rightly describe.

      Photography struck a chord with many people and I look forward to writing more about how any of us can use this medium to brighten our lives.

      Thank you Katharine.

  3. on said:

    so glad to see a post from you the last one I saw was from May and I was very concerned for you.  Hope all is well and I cant wait for your next post




    Tracey McDonough:)

    • Thanks Tracey. I’m working on a post called Twists and Turns that will give some insight into the last few months. Should be ready in the next few days. Glad to hear from you.

  4. Oh how kind of you! I very rarely check my blog’s traffic statistics but just decided to today. I saw a link from your blog, one that is new to me. I’m so honoured to be mentioned in this post, thank you so very much. I do hope your own visual challenges can be improved this year. Best wishes.

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