Macular Degeneration and Me

Low Vision and High Hope

Of Escalators and Wind Socks

When I was a little girl I loved escalators – they fascinated me – all those disappearing steps and then they would appear again.  I thought it was magic.  Even as a teenager and a bit wiser about machinery, I loved going up and down again and again.  In fact, if memory serves, I got into a bit of trouble for deserting my school group to ride the escalator at Port Authority.

Now things are different.  I’m petrified of escalators or at least the ones going down.  With my lack of depth perception, it’s like stepping off a cliff.  Therefore I avoid them at all cost.  Except for yesterday.  I was with someone who wasn’t aware of my depth perception issue and he whisked me to an escalator to head DOWN for coffee.  There was no elevator of stairs.  I mentioned to him that I had this condition, but unfortunately he was disappearing down the escalator and couldn’t help me.

For those of you that read my blogs you know I often imagine life as a sitcom, with me as Lucy.  So I asked myself what would Lucy do?  Well she probably would just slide down the banister, right?  It took me a few seconds to discard that idea.  Next best idea was to hang on to the top of the banister and wait for the opportunity to step down at the right time.  And it worked.  Afterwards I laughed to myself as I imagined what the people behind thought.

Later that same day, my husband and I took a rare break for lunch.  We stopped at a lovely golf club and sat on the deck in the sun.  It was a lovely day.  The golf course was in great condition and I watched several people tee off although of course I never saw the ball.  Across the pond I spotted what I thought was a dog although it was big enough to be a small cow.  I asked my husband which it was and discovered that Rover was really a wind sock to deter the geese.  This was so funny we couldn’t stop laughing.  I’ve wanted a dog but now I’m afraid my husband is going to buy me a wind sock and tell me it’s a dog.  He wouldn’t would he?

I know that some days these things might have bothered me or embarrassed me but really it’s just as easy to laugh and so much better for you.

Have a Lucy kind of day.

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7 thoughts on “Of Escalators and Wind Socks

  1. I will now strive to have a “Lucy kind of day.” Thank you.

    • Angela – I’m glad you read my article. Lucy days are my favorite.

      • Angela – I see you have had exhibitions at MacDowell Colony. Are you a Fellow? My brother is and my sister lives nearby. Small world. Your photographs are beautiful and I love the work you are doing with the Girl Project. Stay in touch please.

  2. Tracey McDonough on said:

    It is coming on one year since my Mac degen dignosos. I look forward to each and everyone of your blogs. It gives me hope that my life will not end as my vision gets worse. Thank you soooo much

    Tracey McDonough

    • Tracey – thanks for your comment. That’s why the subtitle of my blog is High Hope. Let me assure you that your life isn’t over, just changing. Sometimes when a door partially closes, another opens. For me it was writing my blogs and speaking about mac degen as often as I can. As you probably realize, the general public is woefully uninformed. No doubt the vision changes can be frustrating (and miserable). If you haven’t worked with a low vision occupational therapist, I can highly recommend that. Also a low vision optometrist is a good idea. Feel free to contact me any time – we can keep each other cheered up and our hopes high.

  3. D.G. Smeall on said:

    I just signed up to receive your posts. I saw this blog post on Escalators….I can confirm that I too am petrified of escalators now due to my dry Macular degeneration. But with the help of the Cane Training, I received from the Division of Services for the Blind/Deaf-Blind; I find myself stepping off the “cliff” for one last joyful ride downward…but doing it safely with the cane leading me on. I hope you won’t mind if I occasionally add a post here to help us move onward. You inspire me to write and to keep working on my goals professionally.

    • Thank you for commenting. Thank you for your in*sight* into Cane Training from the Blind/Deaf-Blind. I have had safety training but don’t use a cane at this point. I like your sense of humor. Most of my friends and family make every effort to understand how I see or don’t but only someone with the same issues can really get to the heart of the matter. Please continue to read and post. It’s appreciated.

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