Macular Degeneration and Me

Low Vision and High Hope

Ray of Hope

Most of you know I’ve been on edge about the sometimes inflammatory and distorted headlines about macular degeneration.  You know the ones.  Using the word ‘blind or blindness’ with any qualification or explanation, those that give you half a story, those without evidence or truth.  Now I’ve come across something that may be of great help.  It’s called the Chronic Care Model and a new study/trial is underway in Switzerland.

I fist learned about the study from a VisionAware article written by Maureen A. Duffy.  Maureen is, among many things, a Certified Vision Rehabilitation Therapist (CVRT) and Low Vision Therapist (LVT) the professions I consider essential to working with those of us with macular degeneration.

In the article, which I urge you to read in its entirety, she reports that the study called CHARMED or Chronic Care for Age Related Macular Degeneration is an ongoing clinical trial employing the Chronic Care Model.  This model incorporates one of the most important components – that of evidence-based information.  Hurrah!!  Other key elements include patient empowerment, clinical information systems, structured patient follow-up and a specially trained Chronic Care Coach.

The Chronic Care Model is already in place for cancer, heart and diabetes patients where it is working well.  The study will determine whether people with macular degeneration can benefit from this model and enjoy better quality of life and perhaps even better visual acuity.

I’m excited that this study is underway but it’s future care.  While we wait, we should do all we can to get good and proper information, more education about low vision rehabilitation, and create a vision care team that meets YOUR needs.

More about CHARMED coming up soon.  My thanks to Maureen Dufy, editor, author and educator.  Sign up for her blog posts at VisionAware

Any questions or comments, please write.  I’d love to hear from you.

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