Macular Degeneration and Me

Low Vision and High Hope

Double Check What You Read and Hear

During the past few weeks I’ve heard from a number of people who are newly diagnosed with macular degeneration and, as you can understand, are frightened, angry and depressed (their words, not mine).  The most overwhelming fear is blindness.    On one hand that appears logical; on the other the fear seemed mind-numbing.  So I spent some time investigating where the fear originated and was I surprised…..and angry too!

Headlines found on the Internet as well as in newspapers and periodicals were the major culprits.  Not eye care professionals or eye health care organizations such as the Macular Degeneration Foundation or the National Eye Institute but, what I am calling, ill-advised scare-tactic headlines. For example, I found a video about mac degen on a well-know website where the word ‘blind’ was used often.  And in just  a few minutes today, turned up such incorrect, terrifying information about operations to ‘cure’ mac degen I had to click away from those sites.

Now, as many of you know, I lead the charge when it comes to the freedom of the press so my advice to all who either have or just been diagnosed is to take a more than passive understanding of your eye issues (this goes for any health issue).  Be empowered – talk with all the members of your professional eye care team about things you read or hear about – don’t just assume they are true or apply to you.  Carefully consider the credentials of people and organizations that post information about mac degen.

To all of you out there with macular degeneration, newly diagnosed or long-term:  find something you love to do and find a way to do it now.  Love to sew?  Love to quilt? Love to cook or dance or swim or read?  It’s all doable with the right attitude, the right equipment, the right support.

Here’s a favorite story World Champ

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2 thoughts on “Double Check What You Read and Hear

  1. Tracey McDonough on said:

    Hi
    I just wanted to let you know that I love your blog. I find myself reading each multiple times!!! Thank younso much. So much of what is out there is not written by someone who is actually experiencing it. Agai thank you

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